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Ontario SCI Alliance

Partners for Good

The Ontario SCI Alliance is co-led by Spinal Cord Injury Ontario and the Ontario Neurotrauma Foundation (ONF). Together, 250 key provincial stakeholders and strategic partners of researchers, service providers, policy makers, funders and people with spinal cord injury address and resolve systemic barriers in Ontario. We have a clear vision and are getting things done.

June 7 Ontario SCI Alliance Meeting

MEETING DETAILS:

Meetings are for SCI Alliance members only.

When:

Friday, June 7, 2019
10:00 am – 4:00 pm

Where:

In person:
Ontario Neurotrauma Foundation
90 Eglinton Ave E, Suite 601

Via video conference
Zoom: https://zoom.us/j/895657555

Instructions for using zoom (Participants)
Instructions for using zoom (Presenters)

Via teleconference: to come


April 2019 – Ontario SCI Alliance Update

#PEEFORFREE – Access to Medical Supplies in Ontario

#PeeforFree panel at Queen's Park

On March 18, Spinal Cord Injury Ontario and Ontario SCI Alliance Members, in partnership with March of Dimes Canada hosted a reception at Queens Park in Toronto to raise awareness around access to affordable medical supplies in Ontario.

The reception was a great success and the event was very well received with attendance from over 20 MPPs from all four parties as well as community and industry participants. Our panel included MPP Robin Martin, Conservative MPP for Eglinton-Lawrence; MPP France Gélinas, NDP MPP for Nickel Belt, MPP Natalie des Rosiers, Liberal MPP for Ottawa-Vanier; and MPP Mike Schreiner, Leader of the Green Party of Ontario. We were happy to see that all political parties acknowledged the importance of supporting safe and sanitary bathroom practices and the difference affordable medical supplies, like intermittent catheters, can make in the life of a person with an SCI.

We are now looking forward to a confirmed meeting with Honourable Christine Elliot, Minister of Health and Long-Term Care this month to further discuss how the Government of Ontario can support #peeforfree.  To support our progress in achieving #peeforfree, please help by participating in 2 ways:

 

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1. Participate in our social media campaign – #peeforfree

Share your story on the affordability and availability of catheters using the hashtag #peeforfree (twitter, facebook, linkedin, Instragram) and tag SCIO

Post our video on your websites

Write blogs linking to our video

 

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2. MPP letter writing campaign

Go to www.yourmoveontario.ca

Engage your MPP on the issues of access to medical supplies (this takes less than 2 minutes to complete)

In July 2019, based on how many supportive #peeforfree meetings with MPPs, we will consider a private members bill

 


Submissions to Standing Committee on Social Policy – Government of Ontario

On April 2, SCIO was invited to provide feedback to the Standing Committee on Social Policy on Bill 74, The People’s Health Care Act. Over 7,000 people have filed a submission on the New Health System Bill which will pass within this PC majority government.  More details to come in the 2019 Provincial budget release on April 11. Our submission is below.

Furthermore, we attended a teleconference with Christine Elliott, Minister of Health and her Deputy Minister Helen Angus on April 3, discussing how the work of the SCI Sector in Ontario aligns with Bill 74.  There are perceived to be many opportunities for the SCI Community towards working within this act.  Our Alliance members are invested, and we will have a full discussion about Bill 74 and how the implementation process of Ontario Health Agency and its Ontario Health Teams impacts us on June 7 – Be sure to register your attendance on the right.

> View Submission


2019 Government of Ontario Budget

On April 11, the Honorable Minister of Finance, Vic Fedeli unveiled the Government of Ontario’s 2019 Budget, Protecting What Matters Most. This is the first provincial budget to be delivered by the Progressive Conservative government since it was first elected in June 2018. We were pleased to see several smart investments by the government in healthcare, home and community care sector and accessible housing including a commitment to launch “The Rick Hansen Foundation Accessibility Certificate Program “– a 1.3 million investment over two years. For a complete and detailed analysis of the Budget 2019 and its implications for our sector, view below

> View Submission


Pain Management Webinar and Self-Management Course

On March 28, we hosted a certified webcast on neuropathic pain for primary care providers and the SCI Community in partnership with Ontario Telemedicine Network (OTN) Professional Learning Series.

This self-learning program has been certified by the College of Family Physicians of Canada and the Ontario Chapter for up to 1 Mainpro+ credits. Session ID# 188779.

If you or your physician missed it, the webcast is available to watch again.

Once you’ve completed the webcast, don’t forget to collect your certificate by contacting: info@sciontario.org

Furthermore, we are excited to share that we will be launching a Self-Management Course on Pain Management soon.  We are planning to have the course available on our new learning management system for June 7, our next in-person meeting.


Online SCI Research Participation Platform

We are almost there!  Our Project Lead, Emily Giroux, has been working hard to deliver a comprehensive platform where we can truly understand the power behind integrated knowledge translation.  The platform will be hosted on the Ontario SCI Alliance Website. A major function of the platform is the ability for people with SCI to seamlessly engage research in a variety of ways.  Emily will be presenting the beta version on June 7 Ontario SCI Alliance – Don’t Miss out!


Amplify our Community’s Voice

Our 3-year plan 2018-21 is well under way (70% complete!)

Action items for 2019-2020 fiscal year:

  • MPP Engagement Strategy 2019-2020
  • Activist Information Module
  • Research Recruitment Utility Campaign
  • Finalize funding agreement with Ontario Government on Neurotrauma Pathways
  • Address physician incentives within Ontario Health Teams for people with disabilities
  • Operationalize VIP4SCI
  • Develop Bladder Management Webcast and Self-Management Course
  • Revise Prevention and Treatment of Pressure Sore Plain Language Guide to an online course
  • Achieve policy change and practice change on access to mobility devices and medical supplies

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The Next Ontario SCI Alliance Meeting – June 7, 2019

  1. Amplify Our Community’s Voice (3 year plan) Update
  2. Roundtable Discussion – The impact on Bill 74 – The People’s Health Care Act
  3. Rick Hansen SCI Registry Update – Data Collection in Ontario
  4. RHI –  SCI Aboriginal Communities Research Initiative
  5. Ontario SCI Research Funding Renewal Process 2021 – RHI/ONF
  6. Other

UPDATE ARCHIVES

February 2019
November 2018
September 2018
June 2018

 

? Ask Us
Not sure how we can help? Looking for answers? Connect with InfoLine:
Call 1-877-422-1112 or
416-422-5644, ext. 213