Participate in research
Canadian SCI Pain Survey
Chronic pain is one of the most difficult and life-altering challenges faced by individuals with SCI. By participating in this survey, you will help researchers uncover key insights into how pain is experienced and managed by people with SCI. The data collected will guide future treatments and interventions aimed at reducing or eliminating pain for the SCI community.
Participate in the Canadian SCI Pain Survey
We invite adults with spinal cord injury (SCI) across Canada to take part in the Canadian SCI Pain Survey. Led by Robert Buren, a PhD student at the University of British Columbia, who has lived with neuropathic pain since sustaining a T7 spinal cord injury in 2008.
This survey aims to assess the current state of pain intensity and pain treatment methods among Canadians living with SCI. In addition to pain, the survey will explore various factors that impact the pain experience, such as emotions, personality traits, anxiety, depression, support systems, resilience, sleep, and exercise habits.
You do not need to currently experience pain to participate. The goal is to gather a wide range of experiences to help better understand and manage pain within the SCI community. This study, under the guidance of Dr. Kathleen Martin Ginis, is funded by Mitacs and Spinal Cord Injury Ontario (SCIO).
Who Can Participate?
You can participate if you:
- Have a spinal cord injury (SCI)
- Are 18 years or older
- Can read, speak, and understand English
- Live in Canada
What to Expect:
The survey will take approximately 30 minutes to complete, and those who finish the survey will be offered a Canadian vendor gift card as a token of appreciation.
To be eligible for the gift card, participants must provide a mailing address and consent to a short, 5-minute zoom video call. During the call (not recorded), you’ll be asked to confirm your identity with photo identification, a few questions about where you completed SCI rehab, and reflections on living with a SCI. Participation is completely voluntary, and you may exit the survey at any time.
Get Involved
Whether or not you are currently experiencing pain, your participation will provide valuable insights that contribute to future solutions aiming to improve the quality of life for individuals with SCI.
To participate or to learn more please contact Robert Buren at [email protected]
Other opportunities to participate in research
Disability discrimination
Listening to the intersectional lived experiences of youth with disabilities and co-creating solutions
